Our children, our heroines and heros
We bring together and support families with children with Phelan-McDermid syndrome all over France and other francophone countries. Phelan-McDermid children and adults are our heroines and heros, they are courageous and despite all their symptoms, they bring hope. All together with all the families from the "Tehani et les enfants Phelan- McDermid" we contribute to advancing research on this syndrome, we support each other by raising public awareness and we help each other with a strong network. To discover more about our heroines and heros' journeys hover over their photos below to learn about their taste and passions.
He loves to swim and is very fond of music and sugar!
Maxime loves cartoons and the pool
Laura loves school and chocolate, and she loves her mom too
Milan enjoys summer tobogganing and family walks
Coline loves sports and being with others
Méwen likes to ride horses and kinder bueno
Camellia loves cats and walking
Cécile loves creative hobbies and jewelry
Nathan loves life and music
Matteo loves music, swimming and learning how to swim and ... cuddling
Tehani loves music and loves speed when she's in a car
Caroline enjoys making pottery and listening to music