Our children, our heroines and heros 

We bring together and support families with children with Phelan-McDermid syndrome all over France and other francophone countries. Phelan-McDermid children and adults are our heroines and heros, they are courageous and despite all their symptoms, they bring hope. All together with all the families from the "Tehani et les enfants Phelan- McDermid" we contribute to advancing research on this syndrome, we support each other by raising public awareness and we help each other with a strong network. To discover more about our heroines and heros' journeys hover over their photos below to learn about their taste and passions. 

Matteo
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Rafael

He loves to swim and is very fond of music and sugar!

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Maxime

Maxime loves cartoons and the pool

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Laura

Laura loves school and chocolate, and she loves her mom too

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Milan

Milan enjoys summer tobogganing and family walks

Région

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Coline

Coline loves sports and being with others

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Méwen

Méwen likes to ride horses and kinder bueno

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Camélia

Camellia loves cats and walking

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Cécile

Cécile loves creative hobbies and jewelry

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Nathan

Nathan loves life and music

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Matteo

Matteo loves music, swimming and learning how to swim and ... cuddling

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Téhani

Tehani loves music and loves speed when she's in a car

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Caroline

Caroline enjoys making pottery and listening to music

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Maxence
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Ugo