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Our non-profit association aims to:

  • Raise public awareness on the Phelan-McDermid syndrome in France

  • Provide support to people suffering from a rare disease in France

  • Organize and participate in events to raise funds for research

  • Provide support to families and organise conferences with researchers and Phelan-McDermid doctors

  • Work with and support the International Phelan-McDermid Syndrome Fondation in the USA

FIND ALL OUR LATEST NEWS on our French website by clicking on the top left flag

AND ON OUR SOCIAL MEDIA

  • 22q13 Phelan McDermid France PMS
  • Whatsapp
  • @tehanipms
  • 22q13 Phelan McDermid France PMS